The Centre for Cardiovascular Genetics, CKG, is a research centre operating within a partnership between the Heart Centre, the Centre for Medicine, the Child and Youth Clinic and Laboratory Medicine. The vision of CKG is to prevent morbidity and mortality in hereditary cardiovascular disease by offering families diagnostics, genetic counselling, monitoring and treatment. Today, CKG offers family receptions to many parts of the country for individuals with known hereditary cardiovascular disease and their relatives. On these occasions, a whole family is invited to a meeting together with referring physicians from their own hometown. Participants from Nus are generally clinical geneticist, cardiologist, cardiologists specialised in children and/or adults, genetic counsellors, and where appropriate, child cardiac nurse and counsellor. As family members are often dispersed geographically and that there is no need for physical examination during such meetings, video conferencing has been identified as a highly suitable solution for the family meetings. The main advantage of this approach is that everyone, including referring physicians at the family residence, receives the same information and at the same time, which increases patient safety. It also brings major time and cost savings as neither the family nor the team needs to travel.
The centre also offers genetic counselling to individuals or organisations, particularly to inhabitants of the northern healthcare region but also to individuals living in other counties and organisations, such as the National Board of Forensic Medicine in Linkoping.
This text has been originally released in the following report: Telemedicine Survey in the County Council of Västerbotten -An analysis of the present situation, conditions and areas of improvement.